A (fleeting) wish for a sis

We have pretty much decided that Quinn will be an only child. So of course, when I told him this morning that his friend Nate was going to have a baby sister soon, he said, "We gotta go get a baby sister! Quinn want a baby sister." Just how deep is his desire? This afternoon, I was looking at a blog by the mom of a boy from Quinn's orphanage - they're in China now and welcomed a beautiful, smiling baby girl just yesterday. "Look!" I showed Quinn when he came to see what I was doing. "Matthew got a baby sister!" He leaned in close, squinted at the screen and proclaimed, "All done baby sister!" Then he went to play with his toy garbage truck. And that - at least for today... - was that.

The boy and the arm

This month has been so busy - and so blisteringly hot - that I totally neglected to post a report from the doctor who operated on Quinn's brachial plexus injury last year.

The good news is that Dr. Waters is very happy with Quinn's progress. He has almost complete "passive" use of his right arm - if someone moves it around for him - which is a good indication he'll have good "active" use as he gets stronger and stronger. We have to have him checked every year (a good excuse for an annual trip to Boston!) and there is always a chance he'll have problems when he has a growth spurt. The biggest challenge is that he continues to favor the right arm quite strongly, so we need to work on that. We worked with Dr. Waters' physical therapist to tweak his twice-daily exercises, and we learned that he'll probably never be able to reach behind his back with his right arm because the tendon that does that is one of the tendons they transferred to give him the ability to lift and rotate his arm. A good trade-off, I think.

So the news was good. But the visit itself? Not so much. We had a longish wait, during which Quinn was quite angelic, playing games happily in the waiting room. But the minute we went into the examination room - the same one he was in that horribly traumatic day last year that his cast was sawed off - he pretty much freaked out. The physical therapist came in right away, and he cried every time she looked at him. He wouldn't let her touch him, he wouldn't do anything she asked and he kept either hiding behind the curtain separating the room into half or hurling himself on the floor. Then he started spinning uncontrollably. Not a good scene. Eventually, the PT gave up and left the room. It wasn't until then that it hit me: Pull out the puzzles. Thankfully, that worked as well as it always does and Quinn sat on the floor happily doing his puzzles, even after Dr. Waters came in. In fact, when he wanted Quinn to lift his arm or reach in a particular direction, he just held up a puzzle piece. Worked like a charm. Surprisingly, Dr. Waters knew a ton about sensory processing disorder and we talked a lot about how to integrate his treatment and his arm exercises. My goodness, how grateful I am for that man.

In short, the visit got better, we learned what we wanted to learn, and we left and had a good rest of the day. But the next morning as were eating breakfast, I noticed that Quinn - who is NEVER cold - was shivering. And he was not eating, which is equally odd for him. I thought maybe he was sick, and then it hit me what was wrong. I bent down, looked right in his eyes and told him he didn't have any doctor's visits that day. Boom. New kid. He started chattering away, ate his breakfast, put on his shoes and announced he was ready to get on with the day. I just felt horrible. I knew that we were finished, but it didn't even dawn on me that he didn't know that. Poor little guy was just plain terrified. Definitely not one of my best moments in parenting...

Quinn is 4!

Today is Quinn's "Happy Birthday," as he calls it. We're still in Boston, so we had a fun and relaxing day with no medical appointments and lots of stuff Quinn likes to do.

We brought him a couple little presents and Nana sent a recordable story book that he loved (but he kept looking at it when he heard her voice and asking, "Nana? NANA?") We also took him to a local toy store we've been to on previous visits and let him pick out a toy. He picked a small dump truck - no shock for the Things That Go kid - but the surprise is that this kid who has never liked stuff animals and is not what you would call the nurturing type took to this new friend like it was a doll.

First came the greeting - "Hi, Rocky!" - and then came the hugs. Then he started showing Rocky the ropes - when the waitress delivered our food and removed the number from our table, Quinn shared his concern with his new charge. "Oh no, Rocky, she took our sign!"

Best of all came after dinner, when he held up Rocky and asked me, "Go change diaper?" I took him into the bathroom, where he pulled down the changing table, put Rocky on it and asked for a paper towel. We wiped the truck down good, and then Quinn directed me to lay the truck on its back and put on a new diaper (made from paper towels). Quinn gave Rocky a once-over and proclaimed, "Okay, he's all clean!"

Tonight Quinn let Rocky watch us do a puzzle and brush our teeth, and now the two are now sleeping side by side. Many a therapist has tried to get this child to engage in pretend play with dolls and action figures. Turns out that all he needed was a yellow dump truck!

Catching up with Cousin Anna

While in Boston to see Quinn's surgeon, our wonderful friends and China travel companions Susan and Russ drove in with their three kids, including Quinn's Cousin Anna, who joined her family approximately five seconds before Quinn joined ours. (Cousin Malia was the other child adopted in our trio, and we were lucky enough to catch up with her and her sister Cousin Ari at a reunion of kids from the Beijing CWI last year.)

It was so incredibly wonderful to see the kids together again. Anna, nine months older than Quinn, tried her darndest to get him to interact with her. Quinn, being nine months younger and a boy and generally unwilling to make eye contact unless forced, was less interactive but enjoyed himself in his own way. He also dug the "big boys," Cousin Spencer (during a visit to the aquarium he kept hollering, "Cousin Speeeeeeeeen-sur!") and Cousin Kent.

It's amazing how far these kids have come. They went through so much we'll never know about before they came to us, and they've been through so much since. But here they are, growing, smiling, thriving. Anna charmingly sang us a Justin Beiber song during dinner Saturday with the sweetest smile on her beautiful face, and Quinn ran joyfully around every square inch of the New England Aquarium, exhausting him and all of us.

It was a beautiful reunion, and a fabulous weekend. And it made me realize how incredibly blessed we were to be thrown together with two really wonderful families in China who we immediately liked and quickly grew to love. Sometimes you end up with your family, sometimes you get to choose. We chose to bring Quinn into our family, and now - for his sake but also because we just plain want to - we choose the families we traveled with to be part of our own patchworked, embroidered, crazy quilt of a forever family.

We are peeing on the potty! (but not pooping...)

It was no small feat for a kid who is quite content to spend the day in a dirty or wet diaper (thank you, sensory processing disorder...), but we are doing it! Quinn is peeing on the potty! No poop yet, and honestly, no real reason to hope that's going to change any time soon.

Me: "Quinn, where do we go poo-poo?"
Quinn: "On. The. Potty!" (You wouldn't believe the enthusiasm!)
Me: "That's right! And where did you just go poo-poo?"
Quinn: "In. The. Underpants!" (Equal enthusiasm.)

No remorse from this kid. I guess this is the downside to taking the potty training thing nice and easy...

Still, we'll take our successes where we can find them. After all, QUINN IS PEEING ON THE POTTY! After an appalling lack of success with regular reminders, and after discovering the impracticalities of letting him run around naked (it worked, but ONLY when he was naked) we jumped on the prize bandwagon. Oh, my. We had a little basket with some cheap stickers and freebie toys, plus a few toy cars. Within hours the kid had the system licked, and was fishing about for the toy cars. That eventually morphed into demands for toy cars upon peeing, and eventually into determined but not very convincing fake tears when one was not produced. Oops.

So we have moved on to the "prize chart," which was greeted with wailing and desperate cries of "Basket? Toy car?" But finally, a week in, he is on board. He gets a sticker for each time he goes, and works toward prizes - a trip to the "car washer" or the little train ride at the zoo or "Old McDonald's" playland - that was his first choice.

So we're progressing, and we're wearing big boy underpants right out in public. Which is darned inconvenient. It means having to pull over when he says he has to go, spending way too much time in dirty public restrooms and trying to remember to take him to the potty at regular intervals. He's shockingly good about it, and sometimes funny to boot. Yesterday he was trying to pull down his underpants at lunch and was stymied by the drawstring. "Mama," he finally said, quite exasperated. "These pants are locked!"

One year (!) post surgery

Incredibly, it's been an entire year since Quinn's tendon transfer surgery to repair his brachial plexus injury - the "SN" that brought us together. He has almost complete use of his right arm - before the surgery he had almost no use of it - but he still has to be reminded, constantly, to use it.

His one remaining challenge is reaching behind his back, which makes dressing himself quite a challenge. In fact, one reason we decided to go ahead with surgery was meeting an 8-year-old girl with brachial plexus injury who was begging her parents for surgery because she couldn't dress herself, put on her backpack or hang on the monkey bars at school. Anyway, his PT suggested some exercises that didn't really work and I've tried some other things that didn't really work. So not much progress, until about a month ago when I ran into his former feeding therapist, who is the easily most brilliant person I've ever met when it comes to children. "Hmmm," she said, "What could we do?" And on the spot she plopped down on the floor and came up about three exercises THAT ARE WORKING. Incredible. Quinn had no strength to sustain them when we started, but I already see that changing. Score (another) one for the feeding therapist!

We head back to Boston in a couple of weeks for his one-year check up with Dr. Waters. I'll be eager to hear his report, and eager for our strange little family vacation that has become our medical trips to Boston!

Just another way Quinn has changed me for the better

A few years back a woman came to our neighborhood picnic with her son, who has severe autism. He sat down to eat, but quickly got perturbed by something and soon was screaming and flailing. She apologized, explained his autism and they left. I remember feeling so sorry for her but having NO IDEA what to say or do. Sort of a social paralysis.

Flash forward to last Sunday. Same picnic, same woman, same son - but this year she left him home with a caregiver. I joined her in the food line to ask about her son and whether she had watched the "Autism Now" series on PBS a couple weeks back. We started chatting about Sensory Processing Disorder and schools and she offered to share her volumes of knowledge - and house full of SPD gadgets - with me. Cool.

It didn't strike me until later how I couldn't have had that conversation before Quinn came into my life. I didn't have the knowledge, obviously, but I also didn't have any level of comfortable with the subject or, really, any understanding of the challenges and joys of her life.

Once again, I find myself immeasurably grateful to Quinn for opening my eyes to new parts of the world and teaching me about things I didn't know existed. My life is better because of him, and I am a better person for having met him.

To me, that's one of the surprises of parenting a child with special needs. You learn. You grow. Your world expands. And how awesome is that?