Monday, October 31, 2011

Trunk or treat!


I zipped home from work early today and we carved a couple of pumpkins. Quinn drew on the faces, I did the carving. He tried to convince me to trade jobs, but I didn't fall for that one...

We all went trick-or-treating as the royal family. Tom made us crowns (Quinn chose one from his massive collection, and Nana found one that fit her, too) but Quinn also wore a cape. He is always very serious when he puts on a cape...

Here we go!


Our little dog Baxter is having some severe fainting spells due to a leaky heart value, so we're not supposed to get him too excited. A constantly ringing doorbell seemed like a bad idea, so we handed out candy from the back of one of our cars. It turned out to be a really fun thing to do and we got to talk to the neighbors a lot more than we do just opening the door and tossing out some candy while the dogs go nutty. This (and Quinn, of course) made for a really fun Halloween!

Wednesday, October 26, 2011

Preschool dropout



After a three-week trial, the preschool for kids with speech delays decided not to enroll Quinn. They said that redirecting him ("Quinn, sit down. Quinn, are you listening?") was taking too much of the teacher's time. I can't say I blame them, because I know that is a challenge for him.

Surprisingly, I actually feel some sense of relief because I had been working my tail off trying to hide his challenges since this school doesn't take kids with issues other than speech. We were getting up early to run him around the 'hood and burn some energy, watching his diet very closely, not letting him watch any TV in the morning, etc., etc., etc. All good things, of course, but we were making ourselves a little nutty worrying about them all.

So we're back in the hunt for a school that's a good fit for Quinn. Today we visited a church-affiliated school that employs a PT who specializes in sensory processing disorder. They allow about two kids with SPD in each class. But all the kids get "therapy" -- they bring in an OT every Monday and do lots of sensory play every day. In many ways, this place is the opposite of the last school. While that one was very academically focused, this one doesn't really do academics at all. Its philosophy is that kids (at this private school, in this high-end neighborhood) are getting that sort of stimulation at home; what they need at school is social interaction and play. Since Quinn is doing great academically but is in desperate need of social skills, that sounds good to me. The catch: They might not have a slot for him. The school's SN liason was planning to put him in the 3-year-old class (their ages are developmental, not chronological) but changed her mind after meeting him and seeing his impressive brain at work on a puzzle and a game.

And so we wait. We play. And we enjoy our extra time with this fabulous little guy we're blessed to call our son.

Saturday, October 8, 2011

Plan C, D - and working on E

I haven't been  blogging of late because I've been driving. And driving. And driving. Like a long-haul trucker.

As of my last post, I had pretty much decided to skip the speech preschool with the principal who pretty clearly didn't want Quinn. Instead, we decided to give his special-ed preschool another shot, with new goals written into his IEP.

Well.

This year's class has a couple of very challenged kids. And Quinn tends to raise or lower himself to the level of whatever is happening around him. So we were looking at a very bad scene, with increasing behavior issues.

So.

I decided to keep my appointment to visit the speech preschool, and I had the same reaction as the first time I visited. I wanted to hate the place. But I loved it. The teacher is amazing, the assistant is fantastic, the kids are engaged. So I pretty much begged and got Quinn in on a trial basis. We'll find out soon whether he'll be able to stay, and at this point it's anybody's guess.

As the principal feared, he is a challenge to the teachers. He stands up during circle time, walks around during center time, doesn't want to sit and look at a book on his own. But... in three weeks, he has gone from speaking sentences only to himself to having actual conversations with us. He has gone from never, ever participating in his special-ed class group activities to taking part. And he has gone from never, ever singing with us at home to happily singing songs with multiple verses. So I'm working closely with the teacher (who is beyond wonderful), we're practicing school activities at home, we're volunteering at the school and we're praying, praying, praying.

In the meantime, I drive Quinn to "Miss Jocabed's school" for 2 1/2 hours in the morning, then pick him up and drive him across town for 2 hours of "Miss Schreiber's school" in the afternoon. Except on Wednesday afternoons, when we alternate between OT for sensory processing disorder and a therapeutic playgroup for speech and sensory issues. Then it's home to practice "centers."

How much do we practice? In the bath last night, Quinn said, "Mama! This is bath center!"

Saturday, August 20, 2011

Plan B

After much negotiating with the principal of the preschool I've been trying so hard to get Quinn into, she agreed to take him on a one-month trial — provided I came along with him. So I got my schedule all worked out, and then ... she called and said they've decided they want us to come again for a "visit" — and that visit won't be until two weeks into the school year. At that point, he may or may not be invited for another visit. And at the end of all this, he may or may not be accepted. 

What it comes down to is, I think, is they just don't want Quinn at their school. It's grant-supported, and in these tough economic times I think they're quite desperate to show that every kid improved with their curriculum. Because the principal fears Quinn has autism, I believe she's scared he'll skew her rankings. I get that, but I also know Quinn a little better than she does, and I honestly do believe he would thrive there.

But ... but. She expects him to fail. So, really, how could he not??

So while I made the appointment for us to visit in a couple of weeks, my gut tells me we won't be keeping that date. Instead, we're going to return to his special-ed preschool and I'm going to ask that the goals in his Individualized Education Plan be updated. Because, honestly, his speech delay isn't that big a deal anymore. He's progressing beautifully. Instead, I want to ask them to work on helping him to listen and follow directions, to make eye contact and to interact with other kids. Those things, I think, are the keys to helping him succeed later in school. As for speech and academics, we'll work on that stuff at home and supplement with some extra-curriculars like the swim and music classes we've been taking this summer.

It's funny, I've been fighting for so long to make this whole speech preschool thing happen. But now that I've pretty much decided against it, I really feel this path is the best one for Quinn right now.

And so ... here comes Plan B.


Wednesday, August 10, 2011

(Almost) Wordless Wednesday: Day Out With Thomas


Last week we went to a preschool spectacle called "Day Out With Thomas." The kids get to ride in a train pulled by Thomas and also have access to a boatload of related activities: Thomas face painting, coloring pages, jumping castles, train tables, temporary tattoos - and, of course, an entire airplane hangar packed with Thomas merchandise for sale.

Quinn loved every little thing about this event. Tom snapped this photo after we boarded the open-air train and just before it took off. His expression shows the joy and wonder that was on his sweet face the whole day long.

Tuesday, August 9, 2011

The big week is now in our rear-view mirror

When last I wrote (which must have been 10 years ago now - sorry!) I mentioned that Quinn had a big week ahead. So here's how it went:

New play group: Eek! He loved the "play" part, which lasts an hour. The circle time part? Um, not so much. He squirmed, he kicked, he didn't listen, he didn't participate. No big nightmare, but not the biggest success, either.

New music class: Yay! Similar behavior issues, but the class is co-taught by a special ed teacher/ music therapist who is both understanding and full of good ideas. Quinn really enjoys it, although he doesn't exactly do what you would call participate...

New therapist: Yay! LOVE her. Very smart, great with kids. On our first visit she seemed a bit flightly; but on our second visit she showed up armed with a plan of action just for Quinn and a truckload of great strategies. She also served up something I hadn't heard of before: a compression vest, basically two pieces of neoprene that wrap very tightly around him. He is not crazy about the vest, but darned if it doesn't calm him right down.

Entrance evaluation for the speech and language preschool: OH MY GOD! In our first phone conversation, the director told me that Quinn sounded like more than they could handle. She agreed to test him, but made it very clear that if he couldn't finish the test - which can last up to 90 minutes - he wouldn't be admitted. Friends and therapists told me not to worry, that it would be games and fun activities. Wrong!

I swear, it was like the test was created just for Quinn to fail. It was 90 minutes of this poor child sitting at a table answering questions. I could not believe this was being expected of a 4-year-old. At two points I had to sit with him on my lap because he got so squirmy. And once we took a break at my dear mother's absolute insistence. (Also, I put the compression vest on wrong and he immediately tore it off.) But, by God, this child FINISHED that test. Even when the tester came out into the hall afterwards and told us SHE HAD MISSED AN ENTIRE SECTION OF THE TEST AND WE HAD TO COME BACK IN - he did it. I was so proud of him I just hugged him afterwards and tried not to cry. The speech pathologist who administered the test took a quick look at his results and said his receptive language skills are absolutely normal, meaning he understands what he hears - he just doesn't necessarily answer or follow directions based on what he hears.

So is he in? We don't know yet. I phoned the director the next day to ask her what's next, and I could tell she was gearing up to say they weren't going to take Quinn - even though she admitted she hadn't seen his test results yet. So I offered to enroll him on a trial basis, and take him out after a set period if they thought he was too disruptive. She seemed open to that, but we'll have to see.

So why am I so determined to get him into this horrible-sounding school? Because when we visited last spring I was absolutely blown away by the quality of the programming, the love the teachers showed the kids and the results I have heard about from friends who sent their kids there.

We're supposed to hear this week. I swear, I'll post an update before another month has passed!