Incredibly, it's been an entire year since Quinn's tendon transfer surgery to repair his brachial plexus injury - the "SN" that brought us together. He has almost complete use of his right arm - before the surgery he had almost no use of it - but he still has to be reminded, constantly, to use it.
His one remaining challenge is reaching behind his back, which makes dressing himself quite a challenge. In fact, one reason we decided to go ahead with surgery was meeting an 8-year-old girl with brachial plexus injury who was begging her parents for surgery because she couldn't dress herself, put on her backpack or hang on the monkey bars at school. Anyway, his PT suggested some exercises that didn't really work and I've tried some other things that didn't really work. So not much progress, until about a month ago when I ran into his former feeding therapist, who is the easily most brilliant person I've ever met when it comes to children. "Hmmm," she said, "What could we do?" And on the spot she plopped down on the floor and came up about three exercises THAT ARE WORKING. Incredible. Quinn had no strength to sustain them when we started, but I already see that changing. Score (another) one for the feeding therapist!
We head back to Boston in a couple of weeks for his one-year check up with Dr. Waters. I'll be eager to hear his report, and eager for our strange little family vacation that has become our medical trips to Boston!